A Vision

A Vision

We seek to advance research toward a cure for Hunter Syndrome through a collaboration of patient advocacy groups, family foundations, and other relevant organizations.

A Voice

A Voice

We are a strong and powerful voice for children and adults with Hunter Syndrome, bringing together organizations that represent concerned and interested patients, families, and professionals.

A Cure

A Cure

We seek to financially and non-financially support research of the most promising corporate, academic, and other research programs which offer in-their-lifetime treatment and cure opportunities.

A Choice

A Choice

We seek to give our loved ones affected by Hunter Syndrome the opportunity to grow and learn, the opportunity to make choices in their lives, and to live their lives to the fullest.